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News & Press: Radiation News

Ethics of inclusion: Cultivate trust in precision medicine

Friday, August 2, 2019  
Posted by: Lindsey Keeley
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Ethics of inclusion: Cultivate trust in precision medicine

Precision medicine is at a crossroads. Progress toward its central goal, to address persistent health inequities, will depend on enrolling populations in research that have been historically underrepresented, thus eliminating longstanding exclusions from such research.

Yet the history of ethical violations related to protocols for inclusion in biomedical research, as well as the continued misuse of research results (such as white nationalists looking to genetic ancestry to support claims of racial superiority), continue to engender mistrust among these populations. For precision medicine research (PMR) to achieve its goal, all people must believe that there is value in providing information about themselves and their families, and that their participation will translate into equitable distribution of benefits.

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